• About
  • HSCT Links
  • Worldwide HSCT Facilities

HSCT for Multiple Sclerosis

~ Chemo for a Cure

HSCT for Multiple Sclerosis

Monthly Archives: April 2017

10 month update (+309 days post HSCT)

13 Thursday Apr 2017

Posted by ellie1974 in HSCT

≈ Leave a comment

 

hsct10mo

I’m happy to report I’m back to work!  I’ve been an administrator/executive director of assisted living facilities for the elderly for the majority of my career.  I didn’t think I would be able to do this type of work again.  But I am very fortunate to be working for an owner who allowed me to start part-time for the month of April.  I’ll start full time in May and I have permission to work from home one day a week if I need to still transition into full time.

My current health status is improving.  The vertigo has cleared up and I’m back to baseline.  I’m always a little dizzy and take antivert twice a day.  And I’m really tired.  I haven’t been to the gym and I’ve gained more weight.  The integrative medicine doc tested my adrenal glands and I got the results back last night.  I have adrenal fatigue and he said to order adren-plus and to take 2 a day.  Hopefully that helps.

I returned to Northwestern yesterday and today for my one year visit!  I’m early actually since transplant was 6/6/16 but my COBRA insurance ends this month and I’m not sure what my new insurance will cover.  The MRIs of my brain and C-spine both show REMISSION! I already suspected this but it’s always a relief to hear!

mri10mo

My blood work also came back totally in-range!  I did the walk, the peg test, the cognitive math test, and I felt better doing all of them than I had during either of the previous testings.  I also hopped on one foot again which I couldn’t do before HSCT for some reason.  The study neurologist suggested I try green tea capsules to improve my energy level so I may try that.  Both he and Dr. Burt were happy with my progress- I am too!

Our HSCT summer 2016 group has become known as the “summer minions.”  Our facebook group leader had a great idea to make bracelets!  We are like a little family and I’m so grateful to have these men and women on my team!

braceletminionstrong
bracelethsctsummer

 

Sadly, we recently lost a member of our group.  He did not pass from HSCT but rather from a separate medical procedure.  We are all devastated and wish his family strength.

This blog entry is dedicated to David.

 

Like this:

Like Loading...

Subscribe

  • Entries (RSS)
  • Comments (RSS)

Archives

  • April 2018
  • December 2017
  • October 2017
  • June 2017
  • April 2017
  • February 2017
  • December 2016
  • November 2016
  • October 2016
  • September 2016
  • August 2016
  • July 2016
  • June 2016
  • May 2016
  • April 2016
  • March 2016
  • February 2016
  • January 2016
  • December 2015

Categories

  • autologous transplant
  • bone marrow transplant
  • Dr. Burt
  • Hematopoietic stem cell transplant
  • HSCT
  • MS cure
  • MS Society
  • MS stem cell
  • Multiple sclerosis cure
  • stem cell transplant
  • Uncategorized

Meta

  • Register
  • Log in

Blog at WordPress.com.

  • Follow Following
    • HSCT for Multiple Sclerosis
    • Join 27 other followers
    • Already have a WordPress.com account? Log in now.
    • HSCT for Multiple Sclerosis
    • Customize
    • Follow Following
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d bloggers like this: